First formal diagnosis completed! The rheumatologist said I had 'textbook' fibromyalgia. I won't be surprised if there's something else in there at some point in time, but at present I'm happy that we can start treating something. I found it an interesting and slightly unexpected diagnosis as I haven't considered my widespread pain the main symptom (I'm not sure what I considered the 'main' - general poor health and fatigue, maybe?), fibro was not a viable diagnosis in Australia until recently (I need to find out when it changed), and I had believed that 'trigger points' were a necessary diagnosis (which he said were not).



He asked me to go away and consider treatment options, which are basically a few recommended medications and some non-medication alternatives such as acupuncture, tai chi and yoga, 'diet' (no specific one, just 'eat healthy'?) and possibly a few others.



I have a lot of reading to do, as what he provided me with was incredibly basic and really reminded me of what I already knew of the condition. Going forward, I would like to try one of the medications recommended (the serotonin noradrenaline reuptake inhibitors sound good, although they are still anti-depressants and I'm not sure if I can handle those again), a physio program and massage or osteo to complement it (it would be useful if he could refer me so I could get cheaper sessions or something) and the mysterious 'diet', along with tai chi and yoga which I am already doing casually. (less) (less)

First formal diagnosis completed! The rheumatologist said I had 'textbook' fibromyalgia. I won't be surprised if there's something else in there at some point in time, but at present I'm happy that we can start treating something. I found it an interesting and slightly unexpected diagnosis as I haven't considered my widespread pain the main symptom (I'm not sure what I considered the 'main' - general poor health and fatigue, maybe?), fibro was not a viable diagnosis in Australia until recently (I need to find out when it changed), and I had believed that 'trigger points' were a nece (...more)

First formal diagnosis completed! The rheumatologist said I had 'textbook' fibromyalgia. I won't be surprised if there's something else in there at some point in time, but at present I'm happy that we can start treating something. I found it an interesting and slightly unexpected diagnosis (...more)

Saw the rheumatologist this past Monday (05/09). He was sceptical about me having EDS - which I believe is more a lack of knowledge on EDS than anything else - but said he was pretty much certain what I have, so at least I should be getting a diagnosis from him.



I had a bunch of blood tests and urine tests done, and looking them up told me they're mostly related to lupus, so I suspect that's what he's banking on. I also have an MRI I need to book and get done before my next appointment with him.



I'll be seeing him again on 03/10, I think it is. I'm very hopeful. (less)

Saw the rheumatologist this past Monday (05/09). He was sceptical about me having EDS - which I believe is more a lack of knowledge on EDS than anything else - but said he was pretty much certain what I have, so at least I should be getting a diagnosis from him.



I had a bunch of blood test (...more)

Gastroscopy, colonoscopy and iron infusion today. Pending biopsy results there is nothing at all going on, which I feel supports my EDS diagnosis.

In the process of getting a formal diagnosis, probably for EDS at this point. Procedure on 07/07/16 with a gastroenterologist which may explain some gut problems; appointment with a rheumatologist on 05/09/16 which will hopefully give me a diagnosis of EDS and look into any autoimmune issues etc.